Finding and affording a specialist for myalgic encephalomyelitis (aka chronic fatigue syndrome) is difficult, and the two I’ve consulted have different approaches. So I thought I’d share some of my experience.
Hopefully, the following list will help other people with the disease. Each item is on it due to either a doctor’s recommendation or a research finding.
In this video, I research ways to address energy problems in ME/CFS and try a couple of new approaches. One worked, albeit incompletely. The script, with links to sources and products, is below.
In a couple of other videos (here and here), I’ve discussed recent findings regarding energy problems in the cells of people with ME/CFS. (That’s myalgic encephalomyelitis, or chronic fatigue syndrome.) In this video, I try to figure out what I — a person with this disease — might do about it. And then I do it, with some success. As usual, I’ve simplified the biological details. Continue reading
I took a physiology course so you don’t have to! I’ve combined some surprising basics with key terms and research on myalgic encephalomyelitis (aka chronic fatigue syndrome) into less than six minutes. And I’ve tried to keep it fairly simple.
Here’s the script: Continue reading
My wife and I recently saw Jennifer Brea‘s film Unrest at the AFI DOCS festival. We both found it moving. Here’s my review – and my reaction as a person with ME/CFS:
After reading my original posts on his hypothesis (summary, interview, and comments) explaining ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome), Dr. Willy Eriksen sent me additional information regarding a couple of remaining questions. These are: 1) how his model accounts for problems in the gut and 2) how glial cell activation could require weeks to die down after rituximab treatment but only days for post-exertional malaise (PEM). I’ll provide his answers here, although I’ve inserted them in the original posts as well. Continue reading
This interview with Dr. Willy Eriksen, a research professor at the Norwegian Institute of Public Health, is the second of three blog posts on his hypothesis regarding the cause of and potential cure for myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). Here I ask Eriksen to elaborate on his published hypothesis. So please see the first post for a summary of his hypothesis in relatively plain language—or, if you have access, read his journal article, “The spread of EBV to ectopic lymphoid aggregates may be the final common pathway in the pathogenesis of ME/CFS.”
In the third post, I consider Eriksen’s model in comparison to other recent research and my own experience. Continue reading
In a recent paper, Dr. Willy Eriksen proposes a complete explanation for the development, diversity, and persistence of myalgic encephalomyelitis, aka chronic fatigue syndrome (ME/CFS). He also suggests a possible cure. Seeing that this potentially groundbreaking research was attracting little attention, I contacted Dr. Eriksen and interviewed him via email. This post contains a summary of his hypothesis, which I’ve tried to present in everyday language.
Other posts contain 1) the interview, which contains considerable new information about his hypothesis, and 2) my understanding of how Eriksen’s model fits with other research—and with my experience. Continue reading