In June 2017, I put out a series of blog posts about Dr. Willy Eriksen’s hypothesis regarding the causes and potential treatment of ME/CFS (myalgic encephalomyelitis, aka chronic fatigue syndrome): summary, interview, and reaction. Now, in September 2018, Dr. Eriksen has provided an update:
Has your hypothesis changed since you published it?
No, my hypothesis is the same. So far, I have not seen any study results that have convinced me that the hypothesis is wrong.
Have your ideas regarding potential treatments changed? Continue reading
On March 6, I accompanied the irrepressible Emily Taylor of the Solve ME/CFS Initiative to lobby members of Congress. Specifically, we urged them to add ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome) to a list of diseases eligible for research funding from the Department of Defense. This post contains some reflections on the experience. Continue reading
As I’ve noted elsewhere, thiamine forms part of a suite of supplements that might counteract energy problems in ME/CFS. In any case, thiamine (or thiamin) is vital to energy production and other biological processes.
A lot of people think that coffee or tea is vital to getting enough energy, too. For years I was one of those people, and I looked for the instant tea with the highest tea and caffeine content. Yet I noticed over many hiatuses from tea – but not caffeine – that I actually felt moderately better without it. How could this be?
It turns out that tea, coffee, raw shellfish, raw freshwater fish, and other foods contain “anti-thiamine factors.” Continue reading
Finding and affording a specialist for myalgic encephalomyelitis (aka chronic fatigue syndrome) is difficult, and the two I’ve consulted have different approaches. So I thought I’d share some of my experience.
Hopefully, the following list will help other people with the disease. Each item is on it due to either a doctor’s recommendation or a research finding.
In this video, I research ways to address energy problems in ME/CFS and try a couple of new approaches. One worked, albeit incompletely. The script, with links to sources and products, is below.
In a couple of other videos (here and here), I’ve discussed recent findings regarding energy problems in the cells of people with ME/CFS. (That’s myalgic encephalomyelitis, or chronic fatigue syndrome.) In this video, I try to figure out what I — a person with this disease — might do about it. And then I do it, with some success. As usual, I’ve simplified the biological details. Continue reading
Here’s a video with a simplified comparison of VanElzakker’s Vagus Nerve Infection Hypothesis and Eriksen’s “ectopic lympoid aggregates” hypothesis.
Here’s the script: Continue reading