Category Archives: ME/CFS

ME/CFS: Dueling Hypotheses

Here’s a video with a simplified comparison of VanElzakker’s Vagus Nerve Infection Hypothesis and Eriksen’s “ectopic lympoid aggregates” hypothesis.

Here’s the script: Continue reading

Riding an electric bike with ME/CFS

IFS

Recently I rented an electric bicycle and rode it for three hours and twenty-seven miles. That was too much for me, but I’m excited about the bike for shorter rides. I thought I’d share my experience in case others with relatively moderate ME/CFS (myalgic encephalomyelitis, aka chronic fatigue syndrome) are considering buying one.

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Low cell metabolism plagues ME/CFS sufferers

IFS

Myalgic encephalomyelitis, commonly known as chronic fatigue syndrome or ME/CFS, is a disease of many mysteries. Even the most fundamental questions remain unanswered: how does ME/CFS develop, and how can patients recover?

Researchers across the globe are addressing different aspects of this enigma. They seek to uncover a fundamental disruption that underlies the array of symptoms – or at least to identify an exclusive test result, or biomarker, that a general practitioner could use in making a diagnosis. Some labs focus on immune function, others on the gut microbiome, aerobic energy, or brain inflammation, among others.

Promising results are common, but two recent studies of cell metabolism have garnered special attention for their potential in both aiding diagnoses and explaining what goes wrong.

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Vitamin B6 for ME/CFS: Works for me

IFS

Recent research suggests that levels of vitamin B6 in the gut distinguish sufferers of ME/CFS (myalgic encephalomyelitis, aka chronic fatigue syndrome) from healthy people. “Good enough!” says I, “I’ll give it a shot.”

First, though, I looked for information on the most effective form and dosage. Here’s what I found:

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How Cells Produce Energy: The Basics & ME/CFS

I took a physiology course so you don’t have to! I’ve combined some surprising basics with key terms and research on myalgic encephalomyelitis (aka chronic fatigue syndrome) into less than six minutes. And I’ve tried to keep it fairly simple.

Here’s the script: Continue reading

Unrest, ME/CFS film – review and reaction

My wife and I recently saw Jennifer Brea‘s film Unrest at the AFI DOCS festival. We both found it moving. Here’s my review – and my reaction as a person with ME/CFS:

ME/CFS: Eriksen on gut issues and timing

After reading my original posts on his hypothesis (summary, interview, and comments) explaining ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome), Dr. Willy Eriksen sent me additional information regarding a couple of remaining questions. These are: 1) how his model accounts for problems in the gut and 2) how glial cell activation could require weeks to die down after rituximab treatment but only days for post-exertional malaise (PEM). I’ll provide his answers here, although I’ve inserted them in the original posts as well. Continue reading